An article from the 1999 CCCF Newsletter.
This is a great site with tons of information. There is a listing of transplant centers, newsletters, books, and other services. They sell a book entitled Bone Marrow and Blood Stem Cell Transplants on autologous stem cell transplants for about $10.
Don't miss the free online book, Bone Marrow Transplants: www.bmtinfonet.org/bmt/bmt.book/toc.html. This book goes over the nuts and bolts of bone marrow and stem cell transplants including information on infections, infertility, insurance, and graft versus host disease. There is a special section on pediatrics.
This site provides original publications:
- Bone Marrow Transplant Resource Guide: Friends Helping Friends
- Survivors' Guide to a Bone Marrow Transplant: What to Expect and How to Get Through It
- Caregivers' Guide for Bone Marrow/Stem Cell Transplant: Practical Perspectives
- Stem Cell Transplant: A Companion Guide For Breast Cancer Patients.
- Video: The New Normal : Life After Bone Marrow/Stem Cell Transplant
NBMTLink also has a section on frequently asked questions.
The National Marrow Donor Program (NMDP) is the international leader in the facilitation of unrelated marrow and blood stem cell transplantation. This site has information about the services that NMDP provides, financial resources, cord blood transplants, stem cell transplants, donation information, FAQs, and patient stories.
Information, encouragement, and support for those having or considering a bone marrow or stem cell transplant. The site has some original content and links to many of the established BMT sites. BMT Resources publishes "Over 140 Things You Need to Know about Your Autologous Bone Marrow or Stem Cell Transplant"; while this book isn't specifically directed to pediatric patients, it is chock-full of practical information on BMTs.
Unites and builds on the strengths of two leaders in the field of blood and marrow transplantation, the International Bone Marrow Transplant Registry and the Autologous Blood and Marrow Transplant Registry (IBMTR/ABMTR) and National Marrow Donor Program (NMDP). Patient information and newsletters.
E-mail list for bone marrow transplant patients and caregivers. Not pediatric specific, but still quite helpful for parents of children undergoing a transplant.
Community Blood Services is a blood bank that offers blood donations, cord blood banking, and bone marrow registration and donation. Founded in 1953, Community Blood Services is a not-for-profit organization devoted to serving the community's transfusion medicine needs.